Doc's Vein Drain

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Hello everyone! Thanks for visiting the site and checking out the status of the adventure. As you are aware I have made the decision to travel to the Tokuda hospital in Sofia, Bulgaria to be 'liberated' from CCSVI. Joining me, thankfully, is Kim Sutherland; great to have him aboard this adventure.

For those the want some background, here you go... I have had MS 'officially' since Sept 1998 but looking back there were earlier signs that something was just not right.

I went through the usual elimination tests; mylogram (spinal tap and iodine, awesome!) and without a definitive diagnosis paid for an MRI in Calgary (awesome). Neurologist introduced me to his interns as a patient with MS before he told me; (that's three 'awesomes' for those that are counting). No cause, no cure (4 awesomes). Nothing we can do for you; you might qualify for drug therapy (5). Gotta qualify based on physical symptoms, diagnostics, frequency of attacks, Researched the criteria and made sure I met it 'completely' ! Neurologist agreed to referral. Qualified for Betaseron that cost $5000/mth and didn't qualify for exceptional drug status (6). Paid first month and then received conditional status, not sure what the conditions were: probably the degree of compliance with their rules. Felt grateful that I got the drug and had a little bit of hope. Injected every second day in 3 different provinces for 5 years...had injection site reactions and flu-like symptoms for 5 years (7) More to come... So after quitting the inteferon drug, which coincided with living in PEI. I lived in a fairly remote cottage on the Northumberland Strait and started to swim again. Then started to do weights again...then got back on the bike and rode gravel roads. My lunch hour was the pool and after work was the gym and then a 10 km ride; then watch my one channel (CBC) and off to bed. I would imagine that most would not relish the idea of a bike crash but after losing my balance on a trail and crashing down an embankment, I lay there and started to giggle. I had numerous cuts and contusions but it felt good to have an athletic injury. Went home bandaged myself up and my boss at the time, Jenna, picked me up for a road trip and shook her head at my sorry state and laughed with me. Moved back to Sask and continued to swim. It has been helpful but probably should have forced myself to ride and continue the weights. Organizing for one outing is a major feat. I'm sure those that know me are tired of my planning questions..."how are we getting there? Where are we parking? Where is the table? Do we have seats? blah, blah, blah... Sadly that is the reality, I plan my routes and search for the most efficient method of getting there. Good training from the triathlon days, never go back, always forward, run bike and swim the shortest routes, etc. So here we are almost 13 years later and still moving and still working full-time, still swimming and trying new things. Have done a little travelling to Cuba, Mexico and Jamaica (all-inclusives). Great to challenge myself but again daunting because of the unknown. All worked out great. So this procedure (an angioplast) is both hope and opportunity. Not a cure and yet to be decided if it's a cause; but it's the 'dream' that I might get a little better. Bulgaria here we come!!

  • Fundraiser!!
  • Doc is out of the procedure!
Trip Start Jul 25, 2010
Trip End Aug 03, 2010

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