Thank Goodness for Yoga!
Trip Start Apr 22, 2014
19Trip End Apr 22, 2015
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On Sunday, at day 6 following chemo, I developed a really angry rash. Because I have had life threatening reactions to medications in the past, two in particular which involved a rash, Mark & I had to go to the DHMC ER. They told us what would be an emergency and sent us home. An excellent dermatology consult on Monday confirmed a drug rash likely secondary to chemo. I’ll be going to Boston for allergy testing next Monday to make sure we can safely treat me for my next scheduled chemo
On Monday, my muscle aches subsided and I had more energy. I am optimistic that after future chemos, I can plan to lay low on days 3 through 6, knowing that both my blood counts and my energy level will rise after just a short period of discomfort.
I spent a couple of days this week working on coordination of care issues between Dana Farber & DHMC. I had already had each record of my treatment sent to DHMC from DF. I am unimpressed with the cumbersome steps that my physicians must take to receive, locate, print, and then scan each file into my DHMC EMR. That’s not very “electronic” is it?
I’m getting all of my cancer treatment at DF BWCC. But I anticipated the need for urgent care when home, just as it happened on Sunday. The DHMC records still did not my correct diagnosis and the only way the doctors knew what chemo and other meds I had been exposed to, for the emergency evaluation, was because I had a copy of my DF records in hand. This is very frustrating!
Yesterday, I had a productive meeting with Dr. Brooks, my long time PCP & internist. I tried to share some constructive ideas to help figure out a system that will give us confidence when I require care, urgent or otherwise at DHMC while home. He promises to get the folks involved that can put a workable solution in place. I also set up a local standing lab order for the blood work I will regularly need for my DF doctors. The assistants at the DHMC 3 L lab were terrific and helped tremendously with that.
I’ve learned that I have to be willing to advocate for myself, even when doing so adds stress. It’s a good thing I practice yoga. Thank you Jill and "Hanuman" too.