We are the People of Struggle...

Trip Start Jul 25, 2010
Trip End Aug 03, 2010

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Saturday, July 31, 2010

Hello all; Here are some scattered reports/musings over the past few days.  I was thinking about struggle after our Canadian celebratory gala the previous eve and of course the good people of the North of Ireland came to mind; and a line from Free Derry; "We are the people of struggle; ours is the culture of change".  Lots of struggle going on but the people we met are real survivors. Sounds pretty accurate, me thinks.

It's into the 4th day post surgery and I am physically fluctuating.  My jugulars are rather annoyed at me for the 'rack' torture I subjected them to.  I went for a swim a couple of days ago...well not much of one as I can't do front crawl as my arms won't rotate enough.  Neck, back, shoulders stiff but that part will come back...I did breaststroke and then stretched in the water but it was a wee struggle.  I'm not walking as well as I did in the immediate aftermath but then I need to 'really' rest!  I'm trying to not overdo it but probably am for someone post surgery.  Gotta take my own advice... rest is not your enemy.  Right now, I'm sore, a little beaten and just don't know.  Can now move and straighten my toes.   It's a little hard to breathe deeply as the azygous vein in the chest was ballooned as well. Chest-ballooned sounds an awful lot like implants!!  Sorry Cha!   But, my tremors and spasticity are the minority and not the majority of the time.  Exit chairs better.  And I too can jump...  Not great air but air; twice!  I can hear all my handball friends looking at each other in disbelief and saying "That's amazing because you couldn't jump before"! HAHA oh sorry as the kids would say lol.  And no, you can't take me to parties and display my new talents..."i am a human being"  (elephant man channel).  
I've dispensed with the comma as my punctuation of choice (I believe all sentences are naked without the ample use of commas) and now utilize the dot dot dot...method,,,, pretty effective doncha think Mike!

Speaking of the treatment (that's my method of segway...pretty smooth huh!!) they gave me two cd's of the scans.  Get this they only work on pc's so no luck sharing.  Also I read the discharge report and the actual stenosis (narrowing) was 90-95% left, 85-90% right; 75-80% chest.  And the atmospheres of pressure applied was not 8 but 10-12 atmospheres.   Like I even know what an atmosphere is! or could possibly tell the difference!  Anyways that's what it says and I do have some 'geeklike' friends that I am sure will figure it out. And you know who you are!

Here's the questions. If your veins are narrowed, clogged or twisted;  How is that a good thing???  Why is that not cause for concern???   Nobodies saying this is the exact cause and/or cure but there is still something wrong with our veins...Granted i won't get back the majority of what I've lost, my myelin is damaged and there is spinal and brain plaque.  But increased veinous flow resulted in improvment.  The medical community is divided over all this consisting of:  pharmaceutical, neurology, vascular, all are coming from siloized (that's correct new word meaning 'to silo') perspectives.  Can't there be one big Sandbox!!  (Rodney King channel).

Regardless I am unbelievably grateful for the few days I've had... I'm hopeful the conventional medical community will be there to assist as necessary, with any resulting complications.  Yeah I'm feeling a little better this morning
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Erin Laing on

Transformation. Hope. Change. I can see all of these things in your words. I imagine it is a roller-coaster of recovery from the procedure and recovery from whatever the effects of decreased circulation, and also the emotional shocks of feeling life change but, as before, not having control over the speed and direction. I am VERY glad that you have braved all the possibilities of this procedure.
It is true. you need rest and give your body time to catch up... and your soul to catch up too! After so many years of waiting for a new hopeful option, it would not be surprising to have some Christmas morning hangover. Remember you don't need to surf these waves alone! We are all waiting here at home, and all of your homes, to support you and harass you to rest! Let us cook for you! Let us run an errand here or there. I think you need a CCSVI moon, (like a honey moon, or Bagy moon) Time to be in this renovated body and to rest from the work of travel and healing.
Ramble Ramble. We miss you. We Look forward to supporting your next steps anyway we can! We look forward to celebrating!
Safe travels. Drink lots of water. Take good care of Amsterdam!

Erin Laing on

That is "Baby Moon". "NOT Bagy" Moon. not sure what that would be but, if it were to feel good. do it!

Gina on

Doc baby, Rest my friend Rest!! You are right, rest it is not your enemy it's just part of the deal, big picture and all that stuff...you know.... and it's what your body really needs right now...Plenty of time to push later.......and I know you will....I luv you lot's but your freakin me out with all the pushing ... so rest please......ok? and By the way Mark I am totally flippin stoked for you and the ms community with this new found hope.......the before and after video had me balling my eye's out, what a gift....this surgery is.....sounds like your pretty sore so it's a gift wrapped in barbed wire...but none the less a great great gift.....take your time opening it! Big Hug to Kim for being a awesome travelmate...Godspeed you two.....Gina xoxo

Colin & Karen on

Safe travels home .... when do you get to Regina?

Mike Campbell on

I am impressed with the paucity of commas and fully endorse the ... method of linking thoughts.

Still encouraged by the recovery news and, as you said, cannot figure out why even just the blockages don't seem to be of interest to the medical community. Certainly there can be no harm in removing them. Let's hope you do some resting so your beaten up body can find time to do a little mending.

Hope you're having some fun at least and we look forward to catching your act - such as it is - on the East Coast, as soon as possible!

Rob Harrell on

I believe an "atmosphere" could be the equal to the ambient air pressure at sea level which is somewhere about 14 lbs or so...now scuba divers would know this...anesthetists should...or perhaps the guy putting on your snow tires...just saying...now take a bunch of these...string 'em all together...and sit the hell down...it's called rest...and as much as you perhaps want to catch up...relax and let the bod adjust...pretty good use of the...huh?...r

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