A Canadian Community in Bulgaria (5th & 6th Floor)
Trip Start Jul 25, 2010
20Trip End Aug 03, 2010
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The following entries were made independent of each other but this was part of our day...
They say when you live together, you start to look like each other... ever heard that? Well, today I accidentally swapped passports - locking mine into the safe in the room and tucking Doc's in my money belt. As fate would have it, twice I was asked to "produce your passport please" - and not looking (not realizing) I handed them Doc's passport.
They opened it, looked at it, looked at me, stamped it and I was on my way
It was Doc's passport. Both times. Oh my God. What's happening in Bulgaria? (that is a true story).
All right friends, I gotta get Doc to stop showing off. He can now pass a drunk driving test with out drinking!!! All kidding aside, I am overwhelmed continually watching him walk beside me with a gate stronger than I have witnessed in years. I am constantly moved to quiet tears. I can't imagine what it's like for him, but for me it is like watching a miracle happen in front of me.
He did the toe to toe to toe step today several times (I think he had to keep proving to himself that he can actually do it - something he could NOT do just 24 hours ago). And closing his eyes - touching his nose? Passed that one in spades - and I got it on video as proof. I'm not overstating things when I say 'this is really incredible'.
His color - pink. (I've never told him, but lately saw his color as a bit pasty white with a tinge of gray (and not his hair)... When I mentioned it first thing this morning, he said he noticed it too - thought he had gotten sunburned (till I reminded him he's been in a hospital for two days). When I can find a USB cord for my camera (I forgot mine:~( you will understand what I'm talking about. (Or maybe he's just getting better looking by hanging around me for so long... lol).
And this is happening with each person who comes out of the procedure - we are clearly part of an amazing process. The 'Liberation Treatment' is aptly named. We are also part of an unlikely impromtu community - all Canadians, brought close together by commonalities and drawing strength from each other as we share the latest revelation, cheering gently, the next person in line... Respectfully, no one tells the next person who's about to be wheeled away for the treatment about the pain they are about to experience. A beautiful pain I suggest, but after connecting with many who have gone through it, it is clear that it is very painful.
It's around 9:30 pm here - approximately 24 hours out of his surgery. We ventured to the top of the hospital a half hour ago... there are a few stairs that lead from the room up to the outside door to the balcony. On the way back into the hospital, Doc did not use the railing to come down the stair. Shaky, but so wondrous. As I write this my eyes fill with tears - I'm learning to weep in front of Doc. Amazing doesn't do justice to the gift this is for me to witness. I am so grateful to have been part of this experience and knowing there are so many of you following this with us fills me with gratitude. Thanks everyone for your entries. I am missing home too.
Hi there - Doc here...My body has changed and it is hard to describe but I'll try. I was walking around today once they released me from the IV ball and chain. I walked around the 6th floor and there was a group of fellow Canadians who had been 'liberated' and their significant others chatting. I stood and entered into the banter and after 15 minutes it suddenly hit me...I had not thought about sitting in a chair! Usually I look for an empty place to sit and then plan my route to it....I was slightly surprised to say the least. It has been this way all day. My legs hurt! and they hurt because I haven't used them in this way for a long time. I'm walking a little different so I'm using my muscles different. I have to slow down a bit and take somebody else's advice!!
Tonight I decided to try the heel-toe field sobriety test and I could do it, it wasn't perfect but I could do it. Then I stood outside on the balcony, raised my arms to the side and shut my eyes. This always caused vertigo and resulted in me losing my balance and falling but not today. I have not had a tremor all day!
i want to ensure that everyone understand that I still have MS and am far from perfect or cured for that matter and it is early...BUT...things are different. Real changes are being seen in people 3-5 months post procedure, so the real test is coming. But I do like to test things out and today would have been impossible to stop me from doing just that. I'm still sore as f#@# but ok!!
We have two floors of people all here for the same reason the vast majority from Canada and the 'fraternity/sorority asks the same questions "what are you feeling, how was the procedure? What's different? Do you always walk that way? Everyone is emotionally charged and ranges from happiness, excitement, anger for having to go thru the red tape, etc. They also were talking about Sask and the announcement of clinical trials. They love that I was in the video snippet and can't get enough mocking of me. I deserve that but fun nonetheless.
Good day all in all. And not hooked up to any IV's and it's almost 10 pm here and not an Inga in sight!! Transylvania is definitely alive and well here as they "LOVE MY BLOOD".
Off to bed soon and then find what tomorrow brings